Living with a continence condition can feel isolating at times, but you are far from alone. Millions of people across the UK manage bladder and bowel conditions every day, and a growing network of support groups, charities, and specialist organisations are here to help. Whether you are newly diagnosed, have been managing your condition for years, or are caring for someone who is, finding the right support can make a real difference to your quality of life.

At Medilink®, we understand that managing a continence condition is about much more than the products you use. That is why, alongside our home delivery service for continence supplies, we want to connect you with trusted organisations that can offer guidance, community, and emotional support.

What is a continence condition?

A continence condition is any condition that affects your ability to control your bladder or bowel. This includes conditions such as an overactive bladder, urinary incontinence, bowel incontinence, and conditions that require intermittent self-catheterisation (ISC). Some people develop continence issues as a result of another health condition, such as multiple sclerosis (MS), a spinal cord injury, or a neurological condition.

If you are unsure about your condition or the products available to you, our continence advice pages cover topics including advice for men, advice for women, and guidance on managing potential continence issues.

Why join a continence support group?

Support groups offer something that medical appointments often cannot — the chance to speak with other people who truly understand what you are going through. Many people find that connecting with others in similar situations reduces feelings of anxiety, loneliness, and frustration.

Joining a support group, whether in person or online, can help you to:

• Learn practical tips for managing your condition day to day 
• Find out about the latest treatments and products 
• Get emotional support from people who understand your experience 
• Access information about services and specialist referrals 
• Feel more confident managing your condition at work, when travelling, or in everyday life.

If you would like more guidance on living well with a continence condition, our everyday life advice page has helpful tips on travel, exercise, and getting back to work.

Who can benefit from continence support?

Continence support is available to anyone affected by a bladder or bowel condition - regardless of age, background, or the cause of their condition. Support is also available to family members, carers, and friends who want to better understand how to help their loved one.

Many of the organisations listed below specialise in specific conditions, such as MS or spinal cord injury, which commonly cause continence difficulties as a secondary symptom. Others offer broader support for anyone with a bladder or bowel condition. Whatever your situation, there is an organisation out there that can help.

How does Medilink® support people with continence conditions?

Medilink® is a specialist home delivery service that supplies continence products, including catheters and other appliances, directly to your door on prescription. Our service is designed to be as simple and discreet as possible, so you can focus on living your life.

Our clinical team can offer guidance on the right products for your needs, and our customer service team is available Monday to Saturday, from 9am to 5pm. You can also register online to get started, or find out more about how to place an order.

For professional referrals, our healthcare professional pages have information on referring a patient to Medilink®.

Continence support organisations in the UK

Below you will find contact details and a short description for each of the main UK continence support organisations. All helplines listed are free or low cost.